TABLE OF CONTENTS

  • Foreword 1
  • Acknowledgments 5
  • Table of Contents 7
  • Part 1 – POTS and Associated Disorders 11
  • POTS Overview 14
  • Brief History 16
  • Classifications of POTS 19
  • High / Low Flow 19
  • Developmental POTS 20
  • Deconditioning 21
  • Classification by Primary Symptoms 21
  • Who Develops POTS? 22
  • What Causes POTS? 22
  • Statistical Overview of POTS 23
  • Associated / Related Nervous Disorders 24
  • Amyloidosis 25
  • Autoimmune Autonomic Ganglionopathy 26
  • Diabetes 26
  • Sjogren’s Syndrome 28
  • Sarcoidosis 29
  • Lupus 31
  • Chiari Malformation 32
  • Deconditioning 35
  • Delta Storage Pool Deficiency 35
  • Ehlers Danlos Syndrome 36
  • Mononucleosis 37
  • Epstein Barr Virus 38
  • Lyme Disease 38
  • Extra-Pulmonary Mycoplasma Pneumonia 39
  • Hepatitis C 40
  • Multiple Sclerosis 40
  • Other Conditions 42
  • Part 2 – Signs and Symptoms 43
  • Diagnostic Testing 44
  • Posture Study 44
  • Head Up Tilt Table 45
  • Cardiac Output 45
  • Beat-to-Beat Blood Pressure 46
  • Valsalva Maneuver 46
  • Sinus Arrhythmia 47
  • Transcranial Doppler 48
  • Cold Pressor Test 48
  • QSART Testing 48
  • Endothelial Function 49
  • Part 3 – Causes and Treatment 51
  • The Autonomic Nervous System 51
  • Dysautonomia 52
  • Effects of Posture on Blood Flow 53
  • Specific POTS Case: Patrick’s Story 54
  • Standard Treatments and Lifestyle Changes 55
  • High Salt Diet 56
  • Fluid Intake 58
  • Sleep 58
  • Medications 59
  • Exercises for Autonomic Disorders 59
  • Specific POTS Case: With an Underlying Cause 65
  • Specific POTS Case: Jodi Epstein Rhum Activist 67
  • POTS Bloggers 67
  • Part 4 – Living with POTS 73
  • Working with School Systems 73
  • Symptom Management 74
  • Coping with Hypersensitivies 75
  • Scheduling Considerations 76
  • Academic Considerations 77
  • Academic Performance 77
  • Physical Education 78
  • Drills and Emergencies 78
  • POTS and Insurance 81
  • POTS and Social Security 83
  • Part 5 – Research and Resources 85
  • Ongoing Research Dr Philip Low 85
  • An Autoimmune Connection? 87
  • Vanderbilt Autonomic Dysfunction Center 89
  • Other Leading Researchers 90
  • Finding a Doctor 91
  • Survey of Recent Research 92
  • Part 6 – Medical Definitions 105
  • Afterword 111
  • Relevant Websites 115
  • Index 117

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